Battle over 'Baby Joseph' intensifies
March 2nd, 2011
05:29 PM ET

Battle over 'Baby Joseph' intensifies

The hospital treating Joseph Maraachli – a 13 month old Canadian boy with a progressively deteriorating neurological condition whose parents are fighting to have him transferred to the U.S. for care- has launched a public information campaign to address what hospital officials  say are "outrageous and defamatory" allegations.

In a statement released earlier this week, Ontario’s London Health Sciences Centre said that "allegations that staff and/or physicians at LHSC might 'kill' Baby Joseph are outrageous and defamatory," and that "those who make such allegations do so either out of ignorance of the law, which will not provide a defense, or for their own nefarious motives." LHSC says they have received threats from individuals in both the United States and Canada and they have increased security measures as a result.

Baby Joseph has been in the care of the hospital since October 2010. In January a Canadian Superior Court judge ruled in favor of the hospital to remove his breathing tube without replacement, including a do-not-resuscitate order and recommendations for palliative care.

The Maraachlis refused to consent.  They say they want their son to receive a tracheotomy and be transferred home, where he can die in the care of family instead of in a hospital.  Joseph's aunt, Samar Nadar, says that in 2002 the Maraachlis' daughter, Zeina, died at home with a tracheotomy after suffering similar complications. The family is of Lebanese descent and has looked into the genetic histories on both sides, but there is no background of this condition.

LHSC says inserting a tracheotomy tube is an invasive procedure typically recommended for patients who require a long-term breathing machine. "This is not, unfortunately, the case with Baby Joseph, because he has a progressive neurodegenerative disease that is fatal." the hospital says.

Baby Joseph's plight has gained the support of organizations like the Terri Schiavo Life & Hope Network and Priests for Life, who are advocating for the family members' right to care for the child as they see fit.  Various disability rights groups and faith organizations are planning to hold rallies and prayer vigils outside of  the LHSC Children’s Hospital this weekend.

In an additional twist, Tuesday the attorney representing baby Joseph's family, Mark Handelman, resigned from the case. He offered no comment as to why.  Handleman had been working with the family on a formal appeal of the court decision. The parents have 30 days from the Superior Court decision to appeal; it is unclear whether an appeal is still pending.

soundoff (78 Responses)
  1. bob

    That sucks, but if it's going to kill the kid, does it matter where he dies? At home, he won't take up a hospital bed. In a hospital, his parents might not be there when he does die. It's a catch 22.

    March 2, 2011 at 18:10 | Report abuse | Reply
    • Emmaleah

      Bob, in hospital in Canada, it's rare for parents not to be in the room with a sick child 24/7. The nursing staff become extended family. The only way that the family won't be there is if they leave. Further, they are welcome to take their child home. They just cannot have a tracheotomy. That's all.

      They think that a trach will allow them to take their child home and sustain him for 6 months as they did their first child. Their first child died a dreadful, painful death due to inevitable complications of the trach. The hospital doesn't want Joseph to suffer.

      March 3, 2011 at 17:17 | Report abuse |
  2. Diane

    I feel badly for the parents no matter how it ends up, they are going to loose their child. He may or may not be suffering now, he may or may not feel pain, we really don't know. However, to extend his life such as it is on a ventilator is cruel. So is having a tracheotimity done just to prolong his time at home. Let the child be taken home by his parents, like they wish, to die in peace at home as he is.

    March 2, 2011 at 19:38 | Report abuse | Reply
  3. f4xtrafn

    At home there won't be a nurse 24/7 and the parents, although they mean well, may not know how to provide appropriate appropriate paliative care to alleviate the child's pain and suffering. End of life care involves administration of just the right amount and type of pain medication to alleviate suffering while maintaining as much physical and mental awareness as possible. Unlike an adult, a baby that has limited communication ability, it would be easy to under or over medicate causing either unnecessary suffering, harm or even accidental death by overdose. Other routine procedures like suctioning and oxygen if not properly applied will result in respiratory distress and death by suffocation. In this case, I don't see how dying at home would be more "peacefull" for either the baby or the parents.

    March 2, 2011 at 20:04 | Report abuse | Reply
    • KYpedsRN

      I greatly disagree. The article clearly states that the parents had one child at home with a trach already and she died. THey have been caring for this little boy for quite some time. A hospital has the responsibility to train them appropriately for caring for him at home but as the article states his life expectancy is quite short at this time. How dare we place ourselves in their family situation and pass judgement on them for wanting what they see is best for their child. Their son is dying, let them have some privacy and take him home.

      March 2, 2011 at 20:37 | Report abuse |
  4. Lynne

    My only hope is that the London Health Sciences Centre sues FOX News for inciting death threats against hospital staff, as well as defamation.

    What is not reported is that the couple's first child did receive a tracheotomy, at the parents insistence, and died a horrific death. That child suffered from infection, followed by pneumonia and eventually choked to death. The physicians are correct in their diagnosis and treatment. Furthermore, when the parents tried to ship this poor child to a US hospital in Detroit they were informed that they would not perform that surgery and that the Canadian hospital had determined the right course of treatment.

    I'm disgusted with the outlandish and biased information that infects this country. The almost daily idiotic references to death panels and sinister propaganda against health care systems of other countries is almost unbearable.

    March 2, 2011 at 20:15 | Report abuse | Reply
    • Sick of This

      Further to Lynne's post, I am so sick of seeing the medical professionals involved in this case being villified in the media. They are mothers and fathers as well, not to mention medical EXPERTS in this field. There have been almost a dozen "second opinions" about this case, outside of this hospital, let us not forget that.

      LHSC is one of the best hospitals in Canada, and people wait YEARS to come here for treatment. And yes, I work at the hospital, and yes I have a working relationship with one of the doctors, and I see every day how tormented and anguished they are about this case. They are being threatened and their families as well. Nobody asked for this, and life is not fair. And while it may seem that they are being heartless, they are trying to make the parents see what is best for their son. This is not a matter of keeping Joseph alive, it is an issue about the QUALITY of what little life he has left. I am a mother, and cannot even begin to imagine the sorrow, but it is clear to me that these parents are in denial (understandably so), but the way the media has incited this witch hunt blows me away. Time is ticking away for this little guy and instead of posing for pictures for newspapers and asking for money, these parents should be savouring every last minute they have with their son.

      March 3, 2011 at 09:42 | Report abuse |
    • joe

      Disinformation and sensational journalism. The U.S. has the best medical care in the world. We do need to make changes to the system but not the ones imposed by this administration. I see the judge in FL just handed out another "shellacking" on the bill.

      March 3, 2011 at 13:40 | Report abuse |
  5. Forced_Euthenasia

    Seriously people, the issue at hand isn't really about whether the child should be allowed to go home. The issue is whether any government should EVER be able to "rule" that someone must be left to die.

    How do you like your job at LHSC?

    March 2, 2011 at 20:38 | Report abuse | Reply
    • DAISHI

      Can the parents pay for the procedure? If not, then the judge would only be ruling that taxpayer's money be used on a procedure that won't even give the chance to live. I feel for the family but money can't be expended on a procedure that won't save the child's life.

      March 3, 2011 at 02:41 | Report abuse |
    • Tcat

      I don't think you read the article correctly, the government is not euthanising this child. The child has a terminal illness and IS going to die regardless of care. They are simply debating the best way to ease the child's passing and debating whether the child would be better off getting a breathing apparatus that would enable him to be at home when he passes.

      March 3, 2011 at 05:19 | Report abuse |
    • Jacques

      The government is not making any decisions in this case.

      It is between the doctors and the parents. The courts are only getting involved because of disagreements.


      March 3, 2011 at 09:09 | Report abuse |
  6. Paula

    I'm a Canadian who had the PLEASURE (not) of experiencing the US healthcare system. These Canadian parents are understandably seeking the best for their child. I can assure them, however, that they WOULD NOT want to be on a HMO in the USA. The public Canadian healthcare system is not perfect, but it is a whole lot more "cost effective" than the US system, which frankly is broken by comparison.

    March 2, 2011 at 21:09 | Report abuse | Reply
    • Kathy

      I live in America and am unlucky enough to have an HMO, but at least I have health insurance, so many don't. But here we have established a very expensive program of providing nursing care in the home for brain dead children. Sixteen hours a day a nurse sits one on one with a child in their home. These kids grow, get infections, scoliosis, osteoporosis, fractures from a simple turn, etc. And yet we have children who have no coverage for dental care. So do we give people the right to spend millions of government money on a child or adult who is only alive by machines and tube feedings, and deny medical care to others? That's how its done in America, I'm ready for a change.

      March 2, 2011 at 23:48 | Report abuse |
    • DA

      The cost of American health care is driven up by our willingness/obligation to give treatment to those who cannot afford it. hospitals and clinics are thus forced to pass cost on to consumers. Ours is more expensive but we allow people to make medical decisions for themselves and provide the best available care in a timely manner. Much of my family immigrated to both the US and Canada and both seek treatment in the US for obvious reasons.

      March 3, 2011 at 02:25 | Report abuse |
    • Joan

      Which is why Canadians are streaming across [the line]to get their surgeries and treatments? I really do not get this cost effective issue,people speak of so often.Is it all about money?This poor family,government telling them how to end their childs lifeThe Bible says,there is a day to be born, a day to die etc.I do not see anywhere a hospital or a doctor deciding[this goes for unborn children also]

      March 4, 2011 at 15:43 | Report abuse |
  7. Jerry

    I'm certain Fox News will be whipping up the "Death Panel" accusation, after all it makes them money, and it seems they are the ones whipping this into a story. I'm Canadian, I remember before health care, it was sorta like the USA today, and the child would have been long dead.
    It's a sad thing for a family to loose another child.
    It's sadder still for them to be led on by zealots from another country to promote a social agenda of their own.

    March 2, 2011 at 21:26 | Report abuse | Reply
    • hannah1

      Know what's even sadder? That this couple keeps trying to reproduce after this has already happened once before. I believe that "doing the same thing over and over and expecting a different result" is one of the definitions of insanity

      March 3, 2011 at 08:19 | Report abuse |
    • Starfire

      Hannah, you are cruel. They didn't know their second baby would have the same disorder. They haven't done the same thing over and over. Everyone has the right to hope and try for a healthy 2nd child. I'm sure they won't be doing this a 3rd time, but they are victims, just as much as their children.

      March 3, 2011 at 09:20 | Report abuse |
    • Joan

      Jerry,research the term. useful idiot,then get a mirror.

      March 7, 2011 at 18:06 | Report abuse |
  8. LEB

    Baby Joseph is already dead, his body is just being kept artificially alive by machines. I'm sorry to be insensitive, but if he was moved home he would probably die within hours. Why does the location of his death matter?

    March 3, 2011 at 01:23 | Report abuse | Reply
    • Sick of This

      Interestingly, the doctors have already given the Maarachis the go-ahead to take Joseph home, WITH a nurse and doctor to supervise and care for him until he passes. They will NOT, however, perform a tracheotomy. And Joseph's parents refused, as they think the trach will extend Joseph's life for 6mths as it did his sister's life.

      March 3, 2011 at 09:51 | Report abuse |
    • kwaite

      What matters is whose decision that is to make. His parents or the government.

      March 8, 2011 at 17:59 | Report abuse |
  9. jake

    For the hospital this is just another patient. Baby Joseph will die and his bed will be filled by countless other sick babies.

    For the family- the loss of this baby may every well destroy their lives. For his parents, grandparents, siblings this is not just another patient. How this baby dies is just as important as when. The parents have to accept it, some heartless doctor, lawyer, and courts deciding that the baby meets the criteria for brain death so they are to pull the plug and that's it. These people could be wondering for the rest of their lives what might have been. What would have happened if Baby Joseph had been taken to a US hospital, if they could have had a few more days with him at once. The death of a child is something many parents never get over.

    March 3, 2011 at 02:29 | Report abuse | Reply
  10. Albert911emt

    Once again Fox News incites hatred and threats of violence from their fanatical audience.

    March 3, 2011 at 06:11 | Report abuse | Reply
    • Joan

      Albert,you have NEVER watched Fox news have you?dont make yourself look stupid

      March 4, 2011 at 14:41 | Report abuse |
    • Albert911emt

      Joan, you're the one who is stupid.Conservative, gun toting lunatics like you will use a case like this as an excuse to kill doctors, and anyone else who threatens a life, even a life such as this kid's, who will survive only through machines.

      March 11, 2011 at 16:12 | Report abuse |
  11. hannah1

    Why does this couple keep having kids? They had a girl who died of the same thing, and now this one. I wonder if they have considered NOT reproducing only to have this happen?

    March 3, 2011 at 08:17 | Report abuse | Reply
    • Settle Down

      They have a very healthy 9 yr old son.

      March 3, 2011 at 09:33 | Report abuse |
    • Joe Realistic

      The have "healthy 9 year old son"....who has a small head and is tragically is delayed to the age of 3 year old. Clearly there is a genetic problem.

      March 8, 2011 at 00:01 | Report abuse |
  12. LMD

    Having lost a child at the age of 4 mos(never coming home from the hospital after birth) I do feel the sorrow of this family. It was 26 yrs ago that I had begged pleaded with my hospital to end the suffering of my child,knowing he was not coming home,was in fact dying. The thought then was "any means necessary." All this did was increase more tests,more painful procedures etc.However,it is ,in my opinion in the best interest of the child to remain in the care of the hospital,receiving the treatment prescribed by the hospital,which will also offer pain treatment to reduce the suffering until he dies. The facts are facts, This child will die,and rather than trying to prolong it and make it unfairly painful,the parents for some reason are clearly not thinking in the best interest of this baby.As for the spewers of hate etc. against this hospital,start thinking about the suffering this baby will go through,if the parents are left to continue this futile path.

    March 3, 2011 at 08:36 | Report abuse | Reply
  13. Starfire

    I think they need to get the family together, have a peaceful loving day with him in the hospital, and then let him go. Wouldn't a tracheotomy just give him more pain? I feel for them, though. They are trying to have power in a situation in which they are powerless. Do what's best for the baby, ease his suffering.

    March 3, 2011 at 09:24 | Report abuse | Reply
    • kwaite

      Why are they powerless? They should be able to make the decision.

      March 8, 2011 at 18:02 | Report abuse |
  14. Sick of This

    If anyone is interested in the FACTS of this case, please read:

    March 3, 2011 at 09:46 | Report abuse | Reply
  15. dottie

    I feel for these parents. I have a child with cerebral palsy and has numerous medical issues. My heart goes out to this family.

    March 3, 2011 at 17:02 | Report abuse | Reply
  16. Doug

    Stupid, selfish parents. Period.

    March 3, 2011 at 21:30 | Report abuse | Reply
  17. LittleMo

    The hospital and the doctor can recommend stopping treatment but NOBODY has the right to refuse to give that treatment. And Lynne – you say the older child suffered horribly? What do you think will happen to Joseph when the tubes are pulled? He's not just going to fall asleep. He's going to struggle to breath and whether it's for a few minutes, a few hours, or a few days, his parents willl get to watch their son suffocate and strangle to death. That's not humane. If it's okay for a hospital to decide when life has worth and then's even more than okay for parents to decide they wantt thei child to die at home. That's all this mother and father ever wanted. And if you think so highly of this Canadian hospital why don't you move north and go there for your care. "Waiting years to be treated" is nothing to be proud of – a hospital should be avalable TO ANYONE ANY TIME. You can have this one – I'll take my pick form UPMC Pittsburgh, Johns Hopkins, Mayo Clinic, Cedar Sinai, etc.etc, etc.

    March 3, 2011 at 21:44 | Report abuse | Reply
    • Kathleen

      LittleMo, If you researched the case a little you would know that the hospital is and has always been willing to allow baby Joseph to die at home. What they won't do is a tracheotomy, which will NOT extend or improve his life in any way. They are trying to prevent him from suffering an invasive and unnecessary procedure, and the parents are not listening.

      March 5, 2011 at 11:04 | Report abuse |
    • Sam Tilson

      Little Mo. Pulling a breathing tube is not painful. It leads to a natural death – one that we will all have one day (imagine a world where we were given invasive procedures on our death beds....). If there is any doubt, small amount of medications can be given to ensure no pain. This is humane. The tracheostomy is not.

      March 7, 2011 at 17:59 | Report abuse |
    • kwaite

      Great response.

      March 8, 2011 at 18:03 | Report abuse |
  18. clevercandi

    My heart and prayers go out to the family as they struggle with the decisions they must make for their child.


    March 4, 2011 at 10:19 | Report abuse | Reply
  19. Joan

    Amazing,the Canadians are no longer the kind,God fearing people I grew up with it seems. So much talk of MONEY and the most scarey part is the common thread that it is normal and part of life to have the government tell you what you can and can not do,even when the life of your baby is at stake .And the most AMAZING of all,getting Fox news into the mix.Are you kidding?Why are all the evil people of the world so afraid of FOX NEWS??Could it be that they are shining a light on the under side of bad things going on you do not want out in the open,such as killing a baby .Yes I read the remark meant to shut people up,well,I live in the land of the free,thankfully,not in Cuba or Canada.

    March 4, 2011 at 14:37 | Report abuse | Reply
    • B

      Joan...you sound like an idiot.

      March 6, 2011 at 19:31 | Report abuse |
  20. yancykin

    The parents have american supporters, money to pay for the surgery, a plane to take them to the hospital and doctor they can find to do this surgery the parents want.
    There isn't a hospital or doctor who will take the case in the US. The only reason why is because the Canadian hospital and doctors are right and have been right all along.

    March 5, 2011 at 12:21 | Report abuse | Reply
    • Joan

      Talk about brainwashed ,un informed people. The reason U.S .Hospitals can not [NOT WONT]take the baby is because your esteemed hospital will not release his paperwork. alledgedly That is quite different from your assessment .I see none of my responses have been printed surprise ,surprise. Now I know ,dont cross me.If you think the doctors are right, good for you.

      March 11, 2011 at 18:44 | Report abuse |
  21. john

    Very sad that this has happened to any child; but performing any procedure to allow this child to live longer only prolongs the death process. Is this being done for the parents who want their child around longer or is the procedure not being done to allow the child to pass without another six months of pain and agony? It's an extremely horrible decision to be made...

    March 6, 2011 at 04:31 | Report abuse | Reply
  22. Mathew Smith

    My god americans – wake up. The only ones rallying for this child are right-winged, conservative, christian americans! Why you ask – because everyone else understands that it is wrong to prolong the life of a dying boy with invasive procedures.

    The funny part is that the father, who does not work, is Muslim and married to his first cousin. How is that going to go over with them southern good ol boys!

    March 6, 2011 at 15:26 | Report abuse | Reply
  23. Mathew Smith

    Joan – you are the quintessential american idiot.

    March 6, 2011 at 15:28 | Report abuse | Reply
    • B

      Haha my thoughts exactly!

      March 6, 2011 at 19:32 | Report abuse |
    • Joan

      Matthew, google useful idiot,then look in the mirror.

      March 8, 2011 at 09:13 | Report abuse |
  24. Lee Sansalone

    Question: why are the right winged, conservative, christian groups so fixated on interfering with this case in Canada, when they fail to assist so many young children without heath care in this country??
    Answer: because distorting the facts on this case will serve their own agendas – helping children without health care here does not!!

    March 7, 2011 at 18:02 | Report abuse | Reply
    • Joan

      To LEE S. To answer your question,there is not ONE child here without health care.In fact,poor children and adults as well ,get better health care than every day working people. I see it every day.
      The second part of your question,perhaps,Christians see a baby about to have his life snuffed out,not as a baby from another country,but a precious soul who should die at the hour he is to die,not when a government demands.I suppose most Christians are right winged [that is not a bad thing] Conservatives are usually truly compassionate,is that an agenda? I wouldnt call it intrefearing,but going against evil .even if the people doing the deed do not realize what they are doing.
      Now ,my question,why do so many left wingers hate all who stand for the old values the two countries were built on.

      March 7, 2011 at 18:44 | Report abuse |
    • Lee Sansalone

      Gee Joan, let me see. Because the old values didn't stand for lying, manipulating, etc.

      The baby is not being "snuffed out" Joan, it is called dying naturally. By the way Joan darling, why do think Canada has a lower infant mortality rate and higher life expectancy than us in the great USA......probably because we don't always get it right. Don't be ignorant Joan. You give every American a bad name.,

      March 7, 2011 at 21:00 | Report abuse |
    • Jimmy

      Joan, can you please move to another country...maybe mexico.

      March 7, 2011 at 23:57 | Report abuse |
    • Joan

      Sorry,cant help it,watching the left wing zealots crawling through the windows in Madison,like so many monkeys trying to advance their agenda,leaves the right wing christians far behind .They must be proud. Wonder when they are going to WORK??

      March 10, 2011 at 08:42 | Report abuse |
  25. Sam Tilson

    Apparently, according to the wicked Father Pavone, our hospitals are not stepping up. What a surprise considering most of them won't look after our own kids! Kudos to the Canucks for looking after their own and making good end of life decisions. I wish our docs worried less about money and litigation and had the guts to stand up for their patients.

    March 7, 2011 at 23:56 | Report abuse | Reply
  26. Joan

    Lee ,isnt that interesting,pull the plug and brag about it,then talk about mortality rate,something doesnt add up.Oh well. to each his own. One thing I have learned,,you left wingers are great name callers,and I was under the impression you were all tree hugging,lovey dovey,old hippies.I did pick up on the [end of life decisions]from Sam,now we have three in a row,American haters,probably all lined up at the welfare office ready to cash the big cheques.Jimmy,been to Mexico,done that.

    March 8, 2011 at 09:41 | Report abuse | Reply
    • Educate Joan

      Mt god Joan, please wise up. Ignorance and arrogance are a very bad combo. America doesn't have a lot of friends in the world right now, lets not convince the Canadians how stupid we are!

      March 8, 2011 at 14:27 | Report abuse |
  27. Al

    Isn’t this fantastic! Now doctors and government are going to tell us what’s best for our kids! God help us all!!!!

    Does it gets any more socialist than this?

    March 8, 2011 at 15:25 | Report abuse | Reply
    • Joan

      As you can read here,socialism is what they want,what they have.and if you dont agree with them ,they,having no good answer,go to name calling .Americans have lots of friends in the world as long as the world wants us to dish out money,protection,medical care. It blows my mind to hear otherwise intellegent,educated people, be perfectly content with their government telling them what they can and can not do ,especially in regard to their children.I do notice ,when discussing this with relatives up there ,they are VERY VERY careful not to say anything about the Gov, care [non care] of family members,who are languishing in nursing homes,waiting months and months for a simple test or operation.I think they dare not speak their minds,or they are useful idiots of a socialist Gov.All I hear is how stupid the Canadians are.They could benefit from the education of Glenn Beck,Bill O reilly ,Shaun Hannity,but ,oh I forgot,they are not ALLOWED to hear them in good old Canada,kind if like Cuba,eh?

      March 8, 2011 at 18:39 | Report abuse |
  28. Get a clue Joan

    Joan, it amazes me just how ignorant you are of this case and our system. Do yourself a favor and look up the case of Sun Hudson in Texas who actually HAD the breathing tube removed and died based on a law brought in by probably your hero, George W. Bush. People in glass houses should throw stones.
    And by the way, we can get Glenn Beck, O'Reilly and Hannity in Canada, most of us aren't stupid enough to fall for their B.S.

    March 8, 2011 at 23:07 | Report abuse | Reply
  29. Joan

    Discovery lands safely.the most travelled ,in HUMAN HISTORY.!! Is America not the strongest .,best country ever on this planet, in spite of the left wing kooks trying to bring us down.?Perhaps the doom and gloomers,who hate this country,yet wait with hands outstretched for every handout ,could better spend their time listening ,reviewing the history of countries who have gone down the drain,and not make the same mistakes. Most writing here have one theme,if you dont agree with socialism,marxism,communism,are ...ignorant...well,let me remind you, hasnt worked ,wont work,so wake up while you still have time. Didnt you hear your pal Fidel saying communism hasnt worked,what makes you think its going to work for you.The time for blaming Bush is over,,look what we have now!!!!!!Lord help us all My relatives tell me they CAN NOT get any of the above,or are they afraid to say anything?????

    March 9, 2011 at 13:32 | Report abuse | Reply
    • Its called research Joan

      The Texas Advance Directives Act (1999), also known as the Texas Futile Care Law, describes certain provisions that are now Chapter 166 of the Texas Health & Safety Code. Controversy over these provisions mainly centers on Section 166.046, Subsection (e),1 which allows a health care facility to discontinue life-sustaining treatment ten days after giving written notice if the continuation of life-sustaining treatment is considered medically inappropriate by the treating medical team.

      Explain to me Joan how A HEALTH CARE FACILITY determining when life support is removed being 'the patient's guardian the end of life decision'????????????????????????

      Do the words Hypocrite come to mind. Nice one.

      March 9, 2011 at 14:03 | Report abuse |
  30. Joan

    TO ALL in 1999 Gov. Bush Texas,signed the ADVANCED DIRECTIVES ACT making the patients guardian the end of life decision maker .read it all on line.get your facts before sounding off.

    March 9, 2011 at 13:50 | Report abuse | Reply
  31. Its called research Joan

    September 25, 2004, at St. Luke's Episcopal Hospital in Houston, Texas, with thanatophoric dysplasia, a typically fatal form of congenital dwarfism. She was informed that the infant was most likely unable to survive, and should have his breathing tube removed pursuant to Chapter 166 of the Texas Health & Safety Code, the Advance Directives Act. Under this act, a doctor's recommendations to withdraw medical treatment can be followed, after they have been reviewed by the hospital's ethics committee and after 10 days' notice is given to the patient or guardian. Hudson was given 10 days from written notice to find a new facility to accommodate the infant, but was unable to do so. Texas Children's Hospital states that it attempted to contact 40 facilities without finding a willing one.

    Legal delays prevented the removal of the breathing tube, which would have occurred on November 28, 2004, but a judge ruled that the removal of the tube did not require Hudson's agreement. On March 15, 2005, Texas Children's Hospital personnel removed the breathing tube.


    March 9, 2011 at 13:58 | Report abuse | Reply
  32. Joan

    Then ,the judge ,on March 15,2005 ,with the help of Texas childrens hosp personel decided the day the child should die.In your opinion,that is a good thing? astounding. your point is two wrongs make it right? I read it as an APPOINTED guardian makes the decision .As the book says,to argue with a fool,makes you more of a fool. ,and with that,I wish you all well and pray that no one has to have this happen to them. Poor little baby Joseph,sleeps on,and will wake up in a kinder gentler place

    March 9, 2011 at 18:17 | Report abuse | Reply
    • Its called research Joan

      A fool is someone who claims one thing about a law when its not true. A fool and hypocrite is one who criticizes another country's healthcare system based on ONE case without realizing that it can, does and did happen in their own. Move on Joan. The more you write the more ignorant you become. I hear Fox News is hiring. You'd fit right in.

      March 9, 2011 at 23:31 | Report abuse |
  33. Joan

    Excuse me while I count the times you Canadians have called anyone not agreeing with your socialist ways ignorant .No use you turning on FOX NEWS,you wouldnt understand it . I should worry if Canadians dont like me? yeh,right Didnt one of the terrorists come in here from Canada?I think so,should keep them up there where they get all the love and attention,but ,then you do not like poor little Joshep and his family,so I am confused[again,since I am ignorant ,will not get it] Sam is quite the lovely person.eh?giving your country a very bad name.

    March 10, 2011 at 12:50 | Report abuse | Reply
    • Pierre

      There you again Joan, more ignorance. Even one of your favorite right wing groups in the States, the Heritage Foundation, ranks Canada higher in their economically free rankings again this year. Most Canadians are fiscally conservative, but we know this BECAUSE WE LIVE HERE. Its also too bad that the Conservative Party of Canada has been in power for nearly 4 years. And no honey, none of the 9/11 terrorists came through Canada. They all came by plane through your porous immigration at YOUR airports. I think we better beef up our border to keep those bad guys down south.
      And I find it cute you say we don't like Baby Joseph yet you ignore those millions without health insurance in your country, the 45,000 that die every year in your system due to lack of access, and the hundreds of thousands that go bankrupt partially due to medically bills they can't handle. Nice system.
      Joan we don't hate you. Just your ignorance.
      Do the words OWNED come to mind. Really. Give it up. Its just getting embarrassing for you now.

      March 10, 2011 at 21:18 | Report abuse |
  34. Joan

    Pierre,I said a terrorist was caught coming FROM Canada,not the 911ers.AsI said before,no one here goes without healthcare,not millions,not one.havent heard of anyone going bankrupt over medical bills.WHERE do you get your misinformation?sounds like Michael Moore. It would be wise not to listen to such nonsense,if that was the case,why would everyone come here for treatment,even the Newfound Land premier.Did you know that?It is the best system in the world.I talk to plenty of people who LIVE THERE.,waiting months to get an x ray after falling on the ice last winter,travelling to another province taking a hotel for two nights,having their children take time off to drive them there,and then go home and wait to see if they have to go back,or find out what the problem is.Not only that,a neighbor is a Doctor,but he cant treat them,no they have to go to a town 8 miles away,go to a hospital 23 miles from there ,wait there to be bussed [whole load of patients]to the city hospital,which is half as far from the home they left in the morning. The next door neighbor doctor cant treat them,but have to go to the city on a bus from another town.NICE SYSTEM as you say.Another relative has a disease not curable,so guess what?she is in a nursing home drugged cant respond,cant leave.Sure hope I never wind up on socialized medicine.Will be anxious to see if this passes the canadian test and be printed.

    March 11, 2011 at 22:53 | Report abuse | Reply
  35. Joan


    March 14, 2011 at 08:38 | Report abuse | Reply
  36. Joan

    The silence is deafening.
    The baby escaped in the night.
    Nice system

    March 15, 2011 at 09:29 | Report abuse | Reply
    • gwen

      Joan, wake up already. A stupid faith-based hospital accepted the patent as a "mission case". The only hospital out of the 100s that were asked. The Priests for life are paying. If the brain-washed christian-right wants to pay for the child and their welfare family, power to them. It is simply a publicity stunt. They will probably trach the child, just to let him rot a little more and die of infection later. But, they sure are getting Fox press time! Great set of ethics and morals! No wonder the good ol USA is going down......

      March 20, 2011 at 22:05 | Report abuse |
  37. Joan

    Another amazing Canadian called Gwen. First,a faith based hospital is stupid?? Second,it is not a mission case,find actual cost if you want,and IF it was,whats wrong with that? Did Michael Moore give you the 100 number? without his paperwork baby COULDNT go anywhere SO YOU ARE MISTAKEN OR BEING LIED TO..With answer to prayer,he escaped at[10.p.m.] and has had his surgery.. I would be VERY interested to hear how thebrainwashed Christian right are brainwashed,and about what .Isnt it a GOOD thing that there are Priests for Life? goodness knows there are many out to kill you,old and young in a socialist/marxist country.Surely,you do not think letting a baby die at home with his family is a publicity stunt.That is way out there What have you people have against FOX NEWS?It is the top rated news leaves ALL the others far behind every day.Now ,if so many watch Fox ,can they all be wrong?or are you all wrong,because,there is no denying more are on their side than an not .Think a minute,people who are afraid of TRUTH will deamonize,Fox does not need stunts or more press.I would think ethics and morals would be they who respect life,help the unfotunate ,no matter what their country of origin. Wish all you want,the good old U.S.A. is not going down ,even tho we have to endure this mess but,he will be gone.You can fool people for just so long ,eh?It is nice that you are so concerned about the child[not]There is more concern about MONEY than human life it seems.What to you call welfare?I would say all this free stuff you get up there maternity leave that goes on and on free hospital drugs,sounds like welfare to me,.Well whatever.

    March 21, 2011 at 15:10 | Report abuse | Reply
  38. Joan

    I AM FINISHED.I looked up Priests for life,I read the order for body parts they show,the abortions, step by step..I do not wish to even speak with ANYONE in Canada,or anywhere ,who defame this orginization.They have to be pure evil.to go against someone saving innocent lives. I am sure there are just uninformed readers ,not thinking or taking the time to reason for themselves,going along with the crowd,but that is no excuse.Reading back , so many have talked bad about this Priest and his work,talk bad about Fox news,it is clear there are forces of evil at work.This is coming from a very dark place. Money seems to be a big part of it.[or as the Bible calls it filthy ]So ,this Baby is merely a good glimpse into the evil at work in the world.The name calling,I take as a compliment ,now that I realize from whence it comes.Psalm 139..13 16 needs to be taken seriously.With so many things wrong in this world,to take the time to deamonize a Priest,a News outlet ,both doing good works,has to tell the world ,stay away from these people.God bless you and ,please reconsider while there is still time The clock is ticking.Perhape this is why this little baby was put on this earth,who knows.

    March 22, 2011 at 09:35 | Report abuse | Reply
  39. tusu

    Since the child has to receive anti-anxiety medication, I would assume that 1.) he is in distress due to difficulty breathing or 2.) he is in pain from trying to breath (chest wall muscles, heart, can't be sure).

    I was cool with this story and the parent's struggle til I found out that after the tracheostomy the child had to be given 'anti anxiety medication' (which I suppose is a sedative so the infant isn't struggling as they clean the trach).

    April 21, 2011 at 18:42 | Report abuse | Reply
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